Erivedge…The Update….

I started out writing a diary of my journey, but after a week I really didn’t have much to tell, and decided that what I did have to tell would be better said in a post for you, when I first month was over.

If you are unfamiliar with my journey you can read more in the Too Erivedge or Not Post.

Erivedge or Vismodgib is a strong drug that alters the way in which cells divide, slowing down the growth or curing Basal Cell Carcinoma (until you stop taking the medication.)

After much consideration and consultation I decided to go ahead with the medication and tackle whatever side effects it may bring.

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Vitamin D…….


Reading through my posts you will have gained an understanding of what we class as the “dos and don’t” of Gorlins Syndrome.

One of the main things we need to do is keep covered up in the sun, whether that be with clothing or with very effective sun creams.

This, in time comes with it’s own problems, this would be that we are prone to a Vitamin D deficiency. Vitamin D is gained by exposing our naked skin to sunlight or in our case by taking a Vitamin supplement that contains Vitamin D. The vitamin itself is essential for healthy bone growth and development. It also supports healthy function in the muscles, as well as the teeth.

There are so many Multivitamins out there, and the girls have tried various different types (for the good and for the better), but so far their favourite is Bassett’s Multivitamins.


They are very particular about what they take. If it tastes remotely like medicine the chance of them taking them again is slim however the Bassett’s Soft and Chewy tablets I am told taste like a very popular brand of gummy sweets.

Bassett’s do a vary good range of vitamins for children of all ages and they come in a variety of age groups and also flavours, including Strawberry, Orange and Blackcurrant and Apple.

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Each box contains 30 tablets and they are taken once a day. My girls like to take them of a morning, when they have had their breakfasts.


It makes life so much easier when the extra measures we have to take are enjoyable, taste nice or are easy to apply. We do not want the girls to feel different to other children so having products that fit in to daily living works so much better for us.

Bassett’s Multivitamins certainly tick all the boxes for us.

The Multivitamins from Bassett’s are widely available and for more information please visit the website or have a look over to Facebook, Twitter or Instagram.


Winter Sunsafe


Having Gorlin’s Syndrome comes with it’s responsibilities if we want to stay well.

There are so many things we should and shouldn’t do but one of the main things we have to keep on top of is keeping our skin covered and protected.

We all need sun cream in the summer, but in the case of the girls and I, it has to be a year round affair. In the winter the application routine isn’t as strict as the months of spring and summer but we still need to be sun aware and make sure to Slip, Slop and Slap our body parts that are exposed to the sun.


As a rule I use a moisturiser in the winter that has UV protection included. I do however have the added issue this year of no hair. You would think having no hair would cause less problems, but with it comes a whole new set. Not only is there the constant up keep of the short hair, but there is the intense heat loss. (I have taken to wearing a hat in bed it is that bad. Saying that I think this is down too the Erivedge too). Then there is the need to keep my scalp protected in the sun.

Calypso Sun care offer a wide range of products and in amongst them is Scalp Protection Lotion.

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The formula is SPF 30. The non greasy formula comes in a spray bottled and is to be generously applied to the scalp or hair. It is water resistant and quick drying but the advice that Calypso give is that you should reapply frequently due to perspiration, swimming or towelling.


I found the spray to be pleasant in fragrance and also very easy to apply. There is nothing worse with sun creams and lotions than the thick greasy feeling you get. The ones that you have to massage and massage until it goes away. There is none of that with this lotion as it is thin and clear. I would describe it as having a thin oil texture.

One of the things we have to do as parents to the girls is too make sure that the school are very aware of the girls needs. Although there are not many, there could be, heaven forbid, anything went wrong.

The school knows that they need to wear sun cream and they help them with this, however they do prefer them to able to apply their own cream. Libby has become very good at doing so and Penny is getting there slowly but surely. I am always on the look out for products the girls can use. Calypso do a Once a Day Cream that is ideal.

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The cream is 40 SPF and is Photostable. The treatment is once a day and is water resistant. Very easy to apply and the smallest amount goes a very long way. The product smells very pleasant and isn’t remotely greasy. It feels like you are applying a moisturiser rather than a sun cream.

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(Before school this morning, hence the PJ’s)

The test of course with this one was with the children. Penny was very impressed with the smell. Libby has applied it herself and said she really likes the feel of the cream. She said it was far easier to rub in as it disappeared quicker than the brand we currently use.


All in all I am very impressed with the products. These products are perfect for anyone. For us in particular they are great for the everyday use we need them for, especially during the cold months. (We have to use an SPF 50 when the warmer weather starts to kick in). Calypso have some exciting products that are available on the high street, and I can not wait to see what else they have in the pipe line.

Calypso can be found online and via Social Media. (Facebook, Twitter & Instagram)