My holiday is officially over and I am back to the keyboard to type it all up for you.
The last few weeks have been manic and I have so much to tell you, share and get your opinion on.
First and foremost I would like to update you on the Gorlins Syndrome stuff.
As you are all aware I have been advised to try the Erivedge Treatment. Anyone who likes my Facebook page will also be aware of the dilemma I faced a few weeks ago, however for those of you that don’t here is the dilemma I faced….
After deciding on a start date to commence the Erivedge Treatment I received to letters in the post. One was the confirmation from the Northern Centre for Cancer Care to confirm that I was indeed embarking on the Erivedge Treatment and the other was from the University Hospital of North Durham with a date for surgery to remove the BCC’s I currently have.
Now the dilemma comes from the fact that I want to get rid of the BCC’s I currently have, yes the Erivedge course may get rid of them but it could be months. When I get a BCC my mind takes over and I am not settled until it is gone. Here I am with 6+ and I have the opportunity to get rid of them, but I also have the opportunity to keep them at bay.
After consulting my Gorlins friends I decided that I would ask the team at the Freeman Hospital if they would be happy for me to have the surgery to remove the growths I currently have and then embark on the journey they are offering as a preventative rather than a cure.
Phone call made I awaited a reply and to my great relief my Oncologist is more than happy for me to do this.
Decision made I also decided that if I am going to start from scratch with no BCC’s it is vitally important that I uncover the areas that are hiding at least two BCC’s and get rid of this hair. As you all know the chances of me losing it when I start the treatment are high so I figure lets do this thing properly. Hair off before my pre consult for surgery and fingers crossed all the BCC’s are removed in one fell swoop.
How am I feeling? Well I am relieved to not be in two minds of which direction to take. I have been given the chance to take both options and that’s great. Not looking forward to the surgery, but then who would be? Also, I am apprehensive about the next new step. I am not a fan of new things, creature of habit springs to mind. All I can do is go with the flow and not worry about things I can’t control.
Anyway on a happier note, what have I got coming up over the next week for you to read about?
We have been so busy with days here, there and everywhere. Here are a few teasers for you:
Impromptu Family Day….
Libby’s First Football Match…..
The Journey Across the Border….
Kids in the Kitchen…..
Nothing beats a cup of tea….
I also have a few books to review for you, I will hopefully have an update on my college adventure for you (what a nightmare that is proving to be, yet again), a list of hospital visits and some exciting things coming up this week to also tell you about.
Thank you for reading and I do hope you enjoy what I have to come over the next few days….